I saw my Pain Management Specialist today. Sadly, for the last time, but I can still go to him if I ever need to.
This past week has been a nightmare. My third sympathetic nerve block went awry as usual – except this time, I ended up being hospitalized for two days due to the steroids in the nerve blocks putting my White Blood Cell count and lactic acid level at septic levels. That is a whole ‘nother story, but it resulted in my being discharged and the Infectious Disease Specialist telling me, “Sepsis is no child’s play, and that’s what we treated you for. You responded very well to the treatments and everything we did for you, and you’re so lucky to still be alive and be here with us.”
Anyways, back to seeing my Pain Management Specialist today: I discussed the past weekend with him and conveyed to him that my pain is the same as always (actually worse because the blocks made my back flare up; the pain hasn’t subsided, and it’s all I can do to use my crutches so I’ve been wheelchair bound for the past four weeks). Originally, Plan B was to try the Spinal Cord Stimulator (SCS) if the nerve blocks didn’t work. Now, he said since the blocks have my back so bad, he wouldn’t recommend the SCS. He also said if I did want to try it, which he wouldn’t advise, he would want me to get a second opinion, and then he more than likely would have another doctor do the surgery. He looked utterly hopeless while he told me that I have “moderate/severe CRPS,” and in so many words, that there’s nothing he can do for me because my body isn’t responding to the treatments the way that we hoped it would. Imagine having your doctor tell you this. He looked so hopeless, and it makes me feel even more hopeless as nothing can be done due to my body rejecting everything. He also wants me to see a Pain Psychologist because he said he wants to help the whole me, not just part; and, “I know if I were going through what you are, I would be really depressed.”
However, next week I go out of state for my first Calmare Treatment to see if it will help me. There’s only 22 locations and 10 certified doctors in the USA that do this. This treatment is similar to the nervous system in the sense that it deals with electric pulses and currents. It’s a non-invasive procedure. I would have a ton of electrodes attached to my body, which would send electrical pulses to the nerves and basically “rewire” them. The doctor says that we will know if it will/can help after the first procedure has taken place. The only thing is, it costs thousands of dollars to do, so I’m hoping that a door will open.
Meanwhile, I sit in my usual pit of depression . . . just waiting for this new treatment. I try to be hopeful, yet I face the facts that my body hasn’t accepted any treatment thus far, so I’m not sure if it will work or not.